See that hunk? That’s my husband, Tyler. He is incredible, truly the love of my life, makes me laugh till I cry, and reminds me of what really matters in this life.
He was diagnosed with Cystic Fibrosis when he was just six weeks old. At the time, doctor’s knew it was genetic but not much more. Cystic Fibrosis effects each person with it differently, for Tyler it means issues with breathing and digestion. Tyler describes it best: “Most people’s lungs clear easily, like they are being washed with water. But for patients, with CF, its like trying to clear our lungs with honey. It just doesn’t work.” He spends hours every day doing treatments to keep his lungs healthy and sees specialists hours from our home on a regular basis.
Thankfully, and really much to his doctor’s surprise, Tyler has managed to keep his lungs very healthy. And then COVID. To put it simply, the idea of a pandemic the causes fibrosis was pretty world shaking for us. We knew it wouldn’t be too bad while everything was shut down (not that we wanted it that way for everyone else) but once life resumed to normal for most, our life stayed very much shut in. Maybe you don’t have CF, but maybe you have another reason why you’re in the same boat we are. Here are a few things we’ve found helpful to surviving and thriving during a pandemic.
- Celebrate the small staff- Holiday coming up? Birthday? Movie Night? If you’re stuck in the house, get creative with fun events. If not, you’re going to start feeling like a character in the movie Groundhead’s Day.
- Update a space in your house- Is there an area in your house that you’ve been wanting to update? I’m not talking major reno, that would be terrible. But update some pillows, paint a wall, decorate for a holiday. I find that changing up the space we live in helps it not seems like we’re looking at the same 4 walls.
- Find a new hobby- I started baking again! And sharing that hobby with my daughter. Luckily, my husband’s all time favorite hobby is eating! He decided to try his hand at digital art.
- Learn to cook your favorite meals- Outside of baking, I would not say I am that great in the kitchen. But if you aren’t eating out on the regular, your plate will start to look like the same ole’ same ole’. We challenged ourselves to start learning how to make those amazing nachos from our favorite Mexican restaurant, or that burger Tyler loves, or ribs from the best BBQ joint down the street. Let’s be honest, it isn’t the real deal. But it’s better than frozen pizza, spaghetti, and baked chicken on repeat.
- Try daily gratitude- Nope, life isn’t perfect. But there is always something to be grateful for: a good cup of coffee, a phone call with a friend, a delicious dessert (clearly we like food). Speaking it out loud, especially at the start of your day and give you a focus that bring you outside of yourself and outside of the same space you’ve been in for months now!
And of course, give yourself grace. It isn’t easy being the one (or the family member of one) who is immuno-compromised amid a pandemic. I honestly never thought I would write that sentence, and even less live it. Just remember, you’re not alone and you’re doing great. And let’s all pray this season is close to behind us!